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April 13, 2026Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring2 citationsOpen Access

“I wasn't broken”: Addressing stigma associated with dementia while Walking the Talk for Dementia

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KIKate IrvingFPFernando Aguzzoli PeresWDWalter D Dawson

Key Points

  • The aim is to explore and discuss stigma related to dementia through collective dialogue and personal experiences.
  • Participants engaged in a 40-km walk followed by a two-day symposium.
  • Qualitative reflections were gathered during and immediately after the walk.
  • Content analysis was used to identify common themes among the reflections.
  • Three main themes emerged: 'meeting the person not the label', 'a community in solidarity', and 'I wasn't broken'.
  • Participants recognized unconscious biases towards dementia were widespread.
  • Attendees reported deeper understanding of the impacts of dementia-related stigma.

Abstract

Abstract INTRODUCTION Walking the Talk for Dementia (WTD) convenes people from every continent and multiple perspectives, including people with lived experience, in a 40‐km walk followed by a 2‐day symposium. The aim is collective reflective dialogue about dementia stigma without the burden of professional hierarchies. METHODS Qualitative reflections during and immediately following the walk were analyzed using content analysis to identify common themes. RESULTS Three themes demonstrate an evolution of perspectives about dementia and stigma: “meeting the person not the label”, “a community in solidarity”, and “I wasn't treated like I was broken, and I wasn't broken.” DISCUSSION WTD created an environment where people felt safe to recognize and express their unconscious biases. Participants observed that limiting beliefs about people with dementia were universal, regardless of context. These experiences involved deep self‐learning. Participants left the event with a deeper understanding of dementia‐related stigma and its impacts.

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Cite This Study

Irving et al. (2026) studied this question.

synapsesocial.com/papers/69dc887f3afacbeac03ea539https://doi.org/10.1002/dad2.70331
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