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December 14, 2009Disability Studies Quarterly303 citationsOpen Access

Neurodiversity, Quality of Life, and Autistic Adults: Shifting Research and Professional Focuses onto Real-Life Challenges

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SRScott Robertson

Key Points

  • To examine quality of life challenges in autistic adults through a neurodiversity perspective and evaluate the utility of Schalock's quality of life framework for collaborative problem-solving.
  • Theoretical analysis comparing deficit models of autism with the neurodiversity paradigm.
  • Application of Schalock’s (2000) quality of life framework to categorize and assess core life domains for autistic adults.
  • Conceptualized autism as a natural form of human diversity with unique strengths and challenges rather than an inherent pathology.
  • Mapped real-world challenges of autistic adults onto core quality of life domains using a neurodiversity-aligned framework.
  • Identified participatory collaboration between researchers, clinicians, and autistic adults as necessary for developing effective support interventions.

Abstract

This article examines challenges to the quality of life experienced by autistic adults. The author, who is an autistic researcher, first shares how a neurodiversity perspective offers an important alternative to the deficit model of autism. Whereas the deficit model portrays autistic people as ill, broken, and in need of fixing, the neurodiversity perspective portrays it as a form of human diversity with associated strengths and difficulties. The article’s discussion then shifts to presenting Schalock’s (2000) quality of life framework as a neurodiversity-compatible lens through which domains of quality of life can be viewed. The article analyzes in detail these core domains in relation to the lives of autistic adults. The author suggests that a collaborative approach between professionals/researchers and autistic adults is needed to develop meaningful solutions to these challenges, and he presents possibilities for collaboration. KeywordsAutism, Neurodiversity, Quality of life, Autistic Adults

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Cite This Study

Scott Robertson (2009) studied this question.

synapsesocial.com/papers/69dee4825e217d93a5558edchttps://doi.org/10.18061/dsq.v30i1.1069
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