Adults with congenital heart disease, particularly those with complex disease, frequently experience daily difficulties and inadequate disease knowledge, highlighting a need for targeted counseling.
Supports targeted counseling in complex congenital heart disease; leaves open whether education improves outcomes.
A minority of adults with mild, and a majority of those with complex congenital cardiac disease report difficulties in daily life. A substantial number of these patients feel that they have an inadequate level of knowledge about their disease. Our results suggest the need for a specific programme of counselling.
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Kamphuis et al. (2002) studied this question.
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