Why the study?
The study was conducted to explore issues affecting patients with PH and identify areas patients find most important in their treatment to inform future care policies and long-term management.
Despite the availability of new therapies, patients with pulmonary hypertension still face significant diagnostic delays and substantial emotional and financial burdens.
Persistent diagnostic delays and burdens in PH underscore need for greater awareness; leaves open optimal strategies to accelerate diagnosis.
This study reports the largest UK survey exploring issues affecting patients with PH. The study shows that despite the availability of new therapies, patients are still experiencing delays prior to diagnosis, and experiencing both emotional and financial impacts from the disease. By identifying the areas patients find most important in their treatment, this research can inform future care policies and long-term management to support patients living with PH and their families.
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Armstrong et al. (2019) studied this question.
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