What question did this study set out to answer?

To assess the feasibility of telemonitorization for monitoring physical activity in cystic fibrosis patients.

April 18, 2026International Journal of Rehabilitation Research0 citations

Telemonitorization of Physical Activity in Cystic Fibrosis: Experience From a Cystic Fibrosis Center

ABAna Raquel BarreiraHospital de São José CFCarlos Lopes FigueiredoHospital de São José MCMargarida CamposHospital de São José

Key Points

To assess the feasibility of telemonitorization for monitoring physical activity in cystic fibrosis patients.
Data collected from adult patients at a Portuguese CF center
Remote monitoring of daily step count using smartphone applications
Self-reported physical exercise and recorded symptoms
Quality of life measured with validated questionnaires
Fifteen patients monitored, median age 27 years
Eight patients had FEV1 values below predicted range
Initial step count below 5000 increased during the second week
Median scores were 16 (LCADLS), 53 (PRAISE), and 15 (HADS)

Abstract

Introduction: Physical activity and exercise play an important role in cystic fibrosis (CF). However, adherence and monitoring can be challenging. This study aims to evaluate the feasibility of physical activity telemonitorization in patients with CF. Materials and Methods: We collected data from adult patients with CF followed at a Portuguese CF center, including FEV1, use of CFTR modulator therapy, and use of airway secretion devices. Physical activity was monitored remotely by daily step count, using smartphone applications connected to a digital health platform, during the first two weeks of monitorization. Physical exercise was self-reported by patients. Symptoms and vital signs were also recorded. Quality of life was assessed using validated questionnaires, including CF questionnaire revised (CFQ-R), London Chest Activity of Daily Living Scale (LCADLS), Pulmonary Rehabilitation Adapted Index of Self-Efficacy (PRAISE) and Hospital anxiety and depression scale (HADS). Results: Fifteen patients were monitored through the platform, with a median age of 27 ± 6 years old. All patients were receiving therapy with elexacaftor/tezacaftor/ivacaftor (Kaftrio®). Eight patients had FEV1 values below the normal predicted range. Three patients used oscillatory positive expiratory pressure (OPEP) devices, and one patient used a mechanical insufflation-exsufflation device. Five patients recorded a median of fewer than 5000 daily steps on the first week, increasing to eight patients during the second week. The median LCADLS was 16, the median PRAISE was 53, and the median HADS was 15. Conclusions: Tele-monitorization appears to be a viable tool to monitor physical activity. However, this study has several limitations as some patients did not fully adhere to the platform. Although most patients perceived their health status as good, physical activity remains limited for some, most exhibiting a low active or a sedentary lifestyle. Importantly, the future goal of this group is to have individualized physical activity and exercise prescriptions based on telemonitorization and telecoaching. Anexos 2273₀. png

Ask AI

Helpful

Bookmark

View Full Paper