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April 24, 2026Culture Health & Sexuality0 citations

Digital illness narratives, commoning, and identity reconstruction among breast cancer survivors in post-pandemic China

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RDRuishu DongNanfang HospitalSXSenrui XuQingdao Huanghai University

Key Points

  • To investigate how breast cancer survivors in China navigate identity crises through digital narratives in a post-pandemic setting.
  • Conducted in-depth interviews with 14 breast cancer survivors from a digital platform
  • Analyzed narratives based on Arthur Frank's typology of illness stories
  • Identified themes of restitution, chaos, and quest in personal experiences
  • Participants expressed a sense of bodily 'loss' and eroded support systems
  • Online sharing fostered collective healing and challenged traditional gender norms
  • Life writing emerged as a key tool for community interaction and identity reconstruction

Abstract

This study explores how Chinese female breast cancer survivors navigated bodily identity crises through digital illness narratives within a COVID-19 post-pandemic context. In-depth interviews were conducted with 14 influential survivors from the digital platform Mijian to examine their sense of bodily 'loss' as well as eroded traditional support networks. Grounded in Arthur Frank's illness narrative typology, restitution, chaos, and quest were identified as the key narrative modes articulating participants' sense of loss. Findings revealed that the online sharing of experiences and emotions fostered a form of 'commoning' in the form of a collective process of collective healing and coalition-building within a digital environment. Through shared narrative practices, participants sought to achieve healing and empowerment, challenged dominant gender norms, and reimagined bodily symbols to construct queer forms of embodiment. Within this framework, 'life writing' functioned as a mechanism for identity reconstruction through narrative construction and community interaction. In this way, the critical role of digital illness narratives in providing psychosocial support, sustaining solidarity, and enabling identity transformation during health crises was affirmed.

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Cite This Study

Dong et al. (2026) studied this question.

synapsesocial.com/papers/69eb092b553a5433e34b3c76https://doi.org/10.1080/13691058.2026.2658074
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