Scoping review highlights the need for better disease-specific instruments in pediatric chronic kidney disease assessment.
There is firm reliance on using generic PRMs in children with CKD; however, most lack robust external validation in this population. Co-development and comprehensive validation of disease-specific instruments that reflect outcomes valued by patients and families are required to enhance the relevance of outcome assessment in pediatric CKD care.
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Rejuso et al. (2026) studied this question.
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