Key result
Over 85% of adults with complex congenital heart disease overestimate their true life expectancy.
Why the study?
Patients with moderate to complex congenital heart disease have a shortened life expectancy, but their perceptions of their life expectancy have not been examined.
Cross-Sectional (n=296)
Absolute Event Rate: 75% vs 79%
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Adolescents and young adults with moderate to complex congenital heart disease significantly overestimate their life expectancy, highlighting a critical need for sensitive and accurate prognostic communication to aid in life planning.
Reid et al. (2006) conducted a cross-sectional in moderate to complex congenital heart disease (n=296). Moderate to complex congenital heart disease vs. Healthy peers was evaluated on Estimated life expectancy. Patients with moderate to complex congenital heart disease expected to live to age 75 ± 11 years, only 4 years less than healthy peers, with >85% overestimating their actual life expectancy.
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