Survey highlights unmet needs in menopause, fertility, and male reproductive health for rheumatology professionals.
Background/Aims Rheumatic diseases and the treatments used to manage them influence reproductive health. We explored how access to specialist reproductive health services and advice differs for rheumatology teams across the UK. Methods A survey was developed and distributed using Qualtrics survey software. UK health professionals (e.g., consultants, residents, specialist nurses) were invited to participate via email, social media, and the British Society for Rheumatology newsletter. Results We received 68 responses between July and September 2025. Most respondents were consultants (33%), resident doctors (ST3+, 36%), or specialist nurses (29%) and based in England (59%, 38% unknown location). Most respondents worked at a tertiary centre (60%) and most had access to a specialist service for managing rheumatic disease during pregnancy (60% at their own hospital, 16% at another site). These services included joint obstetric-rheumatology clinics (75%), general obstetric medicine clinics (63%), as well as MDTs (38%) and standardised care pathways/shared guidelines between rheumatology and obstetrics (29%). However, access to specialist services for rheumatology patients were sparse for menopause and advice on hormone replacement therapy (18%). When it came to male reproductive health, only 23% of respondents were aware of accessible local services (e.g., preconception counselling, fertility preservation prior to cytotoxic therapy). The most highly rated areas to prioritise for development within local services were “staff training to upskill in [reproductive health] in the general rheumatology clinic” (selected by 62%), “menopause/HRT management for patients with rheumatic disease” (selected by 38%), and “access to fertility preservation & advice for male and female patients with rheumatic disease” (selected by 35%). Conclusion Whilst the overwhelming focus of existing policy, research, and guideline documents is pregnancy - our survey highlights unmet needs for rheumatology professionals in managing menopause, fertility preservation, and male reproductive health. Overwhelmingly, respondents want to upskill in these areas in their own clinics. This should be a clear call to educators, professional organisations, policy makers, and guideline committees to develop a more inclusive and holistic approach - continuing to build on the progress made in pregnancy care, alongside a broader life course approach for both male and female patients. Disclosure B. Goulden: Honoraria; Speakers fees for a talk on pregnancy & SLE at an event sponsored by GSK. Z. McLaren: None. M. Mouyis: None. I. Giles: Honoraria; Honoraria from MGP as a coauthor on an educational review article in 2020 and speaker fees from UCB. Grants/research support; Unrestricted research grants from Union Chimique Belge (UCB).
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Goulden et al. (2026) studied this question.
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