E073 Young people’s experiences of transition from paediatric to adult rheumatology care in Scotland

Abstract Background/Aims The transition from paediatric to adult healthcare services for young people (YP) with chronic disease can be associated with poor outcomes if not completed effectively. Despite this, less than 50% of YP receive adequate support necessary during transition. With the goal of improving transition outcomes, we performed a survey based on feedback from the YP to find out their transition experience alongside potential areas for improvement. Methods A multicentre retrospective survey whereby 59 YP across Scotland who transitioned from paediatric to adult rheumatology services between 2021-2024 were contacted. This comprised YP from NHS Grampian, Lothian, Ayrshire and Arran, Forth Valley, Greater Glasgow and Clyde and Lanarkshire. 23 YP completed the survey. Results The survey revealed that 78% of YP engaged in discussions about the transition process with their paediatric team; however, 20% still perceived the transition as “abrupt”. Only 42% received printed or online information regarding available resources, and 78.3% did not complete the evidence-based transition tool, ‘Ready, Steady, Go’. Additionally, just 38% had contact with a Versus Arthritis support worker. The most important aspects of transition for YP included meeting the adult team beforehand (65%), having contact details for advice (57%), and knowing that both adult and paediatric rheumatology communicated (42%). Most YPs valued being listened to and treated like adults (72%); 48% reported good communication from their new consultant. 60% felt that their own well-being was the key factor in their care, along with good support from the adult team (42%). Conclusion Although most young people had transition discussions, 20% still experienced it as abrupt—likely due to limited resource signposting and inconsistent use of the transitional tool. YP emphasised the need for better communication between adult and paediatric services and meeting the adult team beforehand. We suggest these areas should be prioritised to improve the transition outcome. Disclosure M. Tavendale: None. M. Kabir: None. L. Robertson: None. C. Anderson: None.