P150 Rare AutoImmune SElf-management (RAISE) programme development: recruitment methods for a nationwide survey to understand the needs of people with rare autoimmune rheumatic diseases in the UK

Background/Aims Rare autoimmune rheumatic diseases (RAIRDs) impact on health-related quality of life. A UK patient survey is underway to determine content of a self-management and psychological support intervention. This study aims to explore effectiveness of recruitment methods. Methods Participants recruited via National Health Service (NHS) Rheumatology clinics or social media platforms including patient charities (RAIRDA, Scleroderma & Raynaud’s UK, Sjögren’s UK, Lupus UK, Vasculitis UK, Myositis UK). Surveys completed online. Interim data analysed descriptively. Results Total 612 participants: 122 (20%) recruited via NHS clinics (H), and 490 (80%) via social media (S). Mean (SD) age H = 54.58 (13.92), S = 59.87 (13.57); majority female (H = 84%, S = 91%). There was a difference in response for people with SLE (H = 23%, S = 3%, X2=50, P < 0.001) and GCA (H = 2.5%, S = 12.7%, X2=9.7, P = 0.0018) compared to other RAIRDs. This difference was not seen in: Sjogren’s disease (H = 27%, S = 30%), ANCA-associated vasculitis (17%; 22%), Scleroderma (9%, 10%), inflammatory myositis (2.5%, 4.5%), antiphospholipid syndrome (1.6%, 0.4%), Behcet’s disease (3.3%, 5.7%), large vessel vasculitis (1.6%, 2%), polyarteritis nodosa (0.8%, 0.2%), Takayasu arteritis (0.8%, 2%), central nervous system vasculitis (0.8%, 1%). Responses for people from the global majority ethnic group were lower (H = 20.5%) S = 5%) than white English/Welsh/Scottish/Irish group (H = 79%, S = 94%); with lower odds of social media response for global majority participants (OR = 0.2, 95% CI 0.72 to 0.56; P = 0.002). Response rates differed by education and employment: no formal education (H = 11%, S = 3%; χ²= 9.38, p = 0.002) compared with other education levels; and retired (H = 34%, S = 47%; χ²=6, p = 0.01) compared with other employment categories. Conclusion Findings suggest differences in how people respond to a patient survey of self-management and support needs, specifically people with SLE, GCA and those from the global majority. Men are under-represented. This supports using multiple recruitment methods to facilitate broader participation in research. Disclosure S. Janjua: None. M. Ndosi: None. M. Griffiths: None. J. Orme: None. I. Berrou: None. Z. Anastasa: None. D. Tremarias: None. A. Hunt: None. A. Berry: None. E. Dures: None. Y. Yusof: None. J.C. Robson: None.