Association Between a novel Adult Congenital Heart Disease Patient-Reported Outcome Metric and New York Heart Association Functional Classification

Unstructured Abstract Patient-reported outcomes are important for clinical care. As part of the Adults with Congenital Heart Disease International Study-II we included an English language version of the novel adult congenital heart disease-specific patient reported outcome metric, the ACHD PRO, for distribution at English-speaking sites. We found that the ACHD PRO scores correlate with NYHA functional class, with an 11-point change in summary score reflecting a 1-category change in NYHA class. These results provide further validation of the ACHD PRO as a tool and suggest clinically meaningful thresholds for differences in ACHD PRO summary score.