Qualitative insights reveal caregivers’ desires for supportive communication in adolescents and young adults with cancer, indicating room for improvement.
Caregivers report a desire for clinician sensitivity to their needs and values, information about the future, and longitudinal connections with individual clinicians. Clinicians might improve caregivers' EOL experiences by eliciting patient preferences, engaging in EOL discussions, adapting to the AYA's developmental and emotional needs, and demonstrating a commitment to AYAs and caregivers as they approach the EOL.
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Sisk et al. (2021) studied this question.
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