Children with inherited arrhythmias or cardiomyopathies engaged in less moderate- to vigorous-intensity physical activity (35 vs 55 min/day) and had lower quality of life scores than normative data.
Cohort (n=35)
Does physical activity modification affect the physical and psychosocial well-being of children with inherited arrhythmias or cardiomyopathies?
Children with inherited arrhythmias or cardiomyopathies engage in less physical activity and have lower health-related quality of life compared to normative data, particularly when modifying their physical activity due to their diagnosis.
Absolute Event Rate: 35% vs 55%
BACKGROUND: We evaluated a cohort of 35 children diagnosed with long QT syndrome, catecholaminergic polymorphic ventricular tachycardia, hypertrophic cardiomyopathy, or arrhythmogenic right ventricular cardiomyopathy with regard to physical and psychosocial well-being. MATERIAL AND METHODS: Patients wore an accelerometer to record their time involved in moderate- to vigorous-intensity physical activity and completed the Pediatric Quality of Life Inventory and the Pediatric Cardiac Quality of Life Inventory. Parents were also asked to describe if their child had changed their physical activity because of their diagnosis and how difficult and upsetting it was for the child to adapt to the physical activity recommendations. RESULTS: Patients were involved in less moderate- to vigorous-intensity physical activity per day (35 min/day versus 55 min/day) and had lower Pediatric Quality of Life Inventory total health scores (79 versus 84) compared to normative data. Overall, 51% of the cohort modified their physical activity in some way because of their diagnosis and changing physical activity was associated with lower Pediatric Quality of Life Inventory and Pediatric Cardiac Quality of Life Inventory scores. CONCLUSION: Our cohort was involved in less moderate- to vigorous-intensity physical activity and had lower Pediatric Quality of Life Inventory total health scores compared to normative paediatric data. Modifying one's physical activity was associated with worse health-related quality of life scores, highlighting a vulnerable sub-group of children. These findings are useful for families and healthcare professionals caring for children who are adjusting to a new cardiac diagnosis of an inherited arrhythmia or cardiomyopathy.
Christian et al. (Tue,) conducted a cohort in Inherited arrhythmia or cardiomyopathy (n=35). Physical activity modification vs. Normative data was evaluated on Moderate- to vigorous-intensity physical activity per day (min/day). Children with inherited arrhythmias or cardiomyopathies engaged in less moderate- to vigorous-intensity physical activity (35 vs 55 min/day) and had lower quality of life scores than normative data.