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May 17, 2026Acta Dermato Venereologica0 citationsOpen Access

Patient Reported Outcomes in Multidisciplinary Care for High-risk Head and Neck Cutaneous Squamous Cell Carcinoma

ECE. CrütsMMMyrthe M.G. MoermansPNPatty J. Nelemans

Key Points

  • This study aims to explore patients' perspectives on multidisciplinary care for high-risk head and neck cutaneous squamous cell carcinoma.
  • 78 high-risk head and neck cutaneous squamous cell carcinoma patients evaluated
  • Standardized questionnaires on quality of life and satisfaction used pre-treatment and post-treatment
  • Decisional Conflict Scale measured decisional uncertainty and support needs
  • Mean health-related quality of life score increased from 0.76 pre-treatment to 0.81 post-treatment (p = 0.077)
  • 73.7% of patients worried about prognosis; 12% reported concerns affecting quality of life
  • 19.2% exceeded the Decisional Conflict Scale threshold, indicating decision-making uncertainty

Abstract

Multidisciplinary care pathways may improve quality of care, yet little is known about patients' perspectives regarding multidisciplinary treatment for high-risk head and neck cutaneous squamous cell carcinoma. This study examined health-related quality of life, decisional conflict, and satisfaction with care in 78 high-risk head and neck cutaneous squamous cell carcinoma patients undergoing multidisciplinary care. Pre-treatment, patients completed a baseline questionnaire, the EuroQoL-5D-5L, and the Decisional Conflict Scale. One month post-treatment, they completed the EuroQoL-5D-5L, Basal and Squamous Cell Carcinoma Quality of Life, and EORTC IN-PATSAT32 satisfaction questionnaires. Mean generic health-related quality of life scores were 0.76 pre-treatment and 0.81 post-treatment (p = 0.077), with minimal impact on disease-specific health-related quality of life (mean Basal and Squamous Cell Carcinoma Quality of Life scores ranging from 0.46 to 1.05). However, 73.7% of patients expressed worries about prognosis, and 12% of patients reported concerns regarding diagnosis and treatment substantially affecting health-related quality of life. The mean Decisional Conflict Scale total score was 26.61, with 19.2% of patients exceeding the clinically relevant threshold of 37.5, indicating decision delay or uncertainty regarding implementation. Approximately one-third of patients reported a need for better decision-making support. Overall, patients reported high satisfaction with care. In conclusion, while multidisciplinary care had minimal impact on health-related quality of life and resulted in high patient satisfaction, one-third of patients required more comprehensive information and value clarification.

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Cite This Study

Crüts et al. (2026) studied this question.

synapsesocial.com/papers/6a095b3f7880e6d24efe106ahttps://doi.org/10.2340/actadv.v106.44413
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