Timeliness of childhood cancer registration in Switzerland before and after implementation of the Cancer Registration Act

Yara Shoman; Aaron Renggli; Lorenz Leuenberger; Grit Sommer; Julia A. Bielicki; Pierluigi Brazzola; Sophia Della Valle; Manuel Diezi; Daniel Drozdov; Fabienne Gumy-Pause; Ana Guerreiro Stücklin; Ursula M. Kuehnel; Katrin Scheinemann; Christina Schindera; Freimut Schilling; Nicolas Waespe; Ben D. Spycher; Luregn J. Schlapbach; Claudia E. Kuehni; Fabiën N. Belle

doi:10.1016/j.eclinm.2026.103964

Key Points

This research aims to evaluate the impact of the Cancer Registration Act on childhood cancer registration timeliness in Switzerland.
Analysis of cancer registration data before and after the implementation of the Cancer Registration Act in January 2020.
Assessment of the increase in registered cases with a focus on adolescents.
Evaluation of collaboration between regional adult cancer registries and the Childhood Cancer Registry.
Post-Cancer Registration Act, registered cases increased significantly, particularly among adolescents.
Strengthened collaboration led to enhanced timely case forwarding to the Childhood Cancer Registry.
Standardized processes improved overall reliability in cancer notifications.

Implication

Demonstrates improved cancer registration timeliness in children after new regulations, indicating effective policy changes.

Abstract

In January 2020, the Swiss Cancer Registration Act (CRA) came into force, making cancer notification mandatory and standardizing cancer registration processes nationwide. Following the CRA, the respective responsibilities of the regional adult cancer registries and the Childhood Cancer Registry (ChCR) were clarified, strengthening collaboration and ensuring reliable forwarding of cases in patients under 20 to the ChCR. Consequently, the number of registered cases has increased, particularly for adolescents.

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Cite This Study

Shoman et al. (2026) studied this question.

synapsesocial.com/papers/6a0bfda5166b51b53d378ebc https://doi.org/10.1016/j.eclinm.2026.103964

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Timeliness of childhood cancer registration in Switzerland before and after implementation of the Cancer Registration Act

Key Points

Implication

Abstract

Discussion

Cite This Study

Timeliness of childhood cancer registration in Switzerland before and after implementation of the Cancer Registration Act

Key Points

Implication

Abstract

Discussion

Cite This Study

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