“They didn't think we'd live this long”: A qualitative exploration of older adults living with HIV perspectives on geriatric care in Ontario

INTRODUCTION: Advances in human immunodeficiency virus (HIV) care have increased life expectancy, leading to more older adults living with HIV. This study examines older adults' perspectives on geriatric healthcare needs. METHODS: A community-based qualitative study in Ontario, Canada, recruited some adults aged 50+ years living with HIV through quota and purposive sampling. Quota sampling was used to include individuals of different ages, genders and ethno-racial backgrounds to capture a range of experiences. Data were collected via semi-structured interviews and focus groups, analyzed using the Qualitative Analysis Guide of Leuven. RESULTS: Participants included interviewees (n = 14) and focus group attendees (n = 12). Four themes emerged: (1) lack of knowledge and access to geriatric care, highlighting service challenges; (2) healthcare providers' understanding of HIV and ageing, with stigma concerns; (3) role of social support networks for emotional/practical support; and (4) requirements for improved geriatric care, advocating provider education and greater social care access. CONCLUSIONS: Gaps in geriatric care for older adults with HIV highlight stigma, access issues and the need for education, virtual care and tailored, inclusive healthcare solutions.