A charter for improving care for people living with chronic lymphocytic leukemia: six principles for excellence

This is the authors' abstract. We don't add key points for this paper.

Chronic Lymphocytic Leukemia (CLL)is the most common leukemia in adults in Western countries, and its incidence is increasing. It is a complex, chronic disease with highly variable behavior. People living with CLL deserve an accurate diagnosis and should be empowered to play an active role in their care. They should be treated holistically as a person, not simply by their diagnosis. This charter has been developed with input from patient advocacy organizations, people living with CLL, and clinical specialists. It highlights the elements of care and support that matter most to people living with CLL as they navigate life with their diagnosis. We urge governments, decision-makers, healthcare providers, patient advocacy organizations, and professional organizations worldwide to embed these principles in their work and ensure they are hardwired into healthcare systems and support services to reform and improve CLL care.