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Registry cohort study uncovers disparities in time to support services in young-onset dementia, highlighting a potential hidden caregiver burden.
OBJECTIVES: Understanding the timing of service access for persons with young-onset dementia is essential for developing adequate support. This study aims to describe the formal support available for persons with young-onset dementia in Sweden and identify factors influencing its provision over time. METHOD: = 2592). Descriptive statistics provided a comprehensive overview of the population, and Cox Regressions were used to analyse factors associated with the time to receive support services post-diagnosis. No significant associations were found between age, sex, medications, care setting, living arrangement, or MMSE score or with the time to access counselling services. CONCLUSION: The timing of access to support services for persons with young-onset dementia varies significantly, particularly for those living with another adult. These patterns may reflect a hidden caregiver burden.
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Kårelind et al. (2025) studied this question.
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