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May 27, 2026Global Qualitative Nursing Research0 citationsOpen Access

Living Before Dying: Nursing Practice in Supporting Meaningful Living for Patients Receiving Home Care at End-of-Life

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JLJérôme Leclerc-LoiselleSGSylvie GendronSDSerge Daneault

Key Points

  • This study aims to understand how palliative care nursing practices support patients in living meaningfully until death.
  • Employed an interpretive descriptive design informed by Sen’s capability approach.
  • Utilized three qualitative methods: co-construction of practice narratives with home-based palliative care nurses, reflexive writing by the researcher, and analytical questioning.
  • Conducted analysis to identify interrelated nursing practice mechanisms.
  • Identified four mechanisms of palliative care nursing: navigating patient values and norms, recognizing dual capabilities of patients, engaging reflexively with practice, and being present through sensitive actions.
  • These mechanisms support a reflexive and relational nursing practice focused on enabling meaningful living for patients.
  • Demonstrates the importance of tailored approaches within the complexities of end-of-life care.

Abstract

Palliative care nursing practice supports individuals and their caregivers through the end-of-life by emphasizing a person-centered approach. However, in practice, nurses must navigate ongoing tensions between organizational norms, professional responsibilities, and the diverse values and wishes of patients, raising questions about how care can remain responsive within complex and constraining contexts. Despite recognition of these challenges, the mechanisms through which palliative care nursing practice sustains meaningful living at the end-of-life remain insufficiently understood. This study examined the mechanisms through which palliative care nursing enables patients to live a meaningful life until death. Using an interpretive descriptive design informed by Sen’s capability approach, the study combined three qualitative methods: co-construction of practice narratives with three home-based palliative care nurses, reflexive writing of a personal narrative by the main researcher, and analytical questioning. The analysis identified four interrelated mechanisms that characterize palliative care nursing practice: navigating between patients’ valued lives and norms; recognizing patients as simultaneously capable and vulnerable; reflexively engaging with one’s own practice; and being creatively present through sensitive and slow actions tailored to each situation. Together, these mechanisms depict a reflexive, relational, and context-sensitive nursing practice oriented toward expanding patients’ real possibilities for living a meaningful life until death.

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Cite This Study

Leclerc-Loiselle et al. (2026) studied this question.

synapsesocial.com/papers/6a1689a80c924ddd1bd584cahttps://doi.org/10.1177/23333936261450446
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