This article discusses ethical challenges in capacity assessment for individuals with disabilities, suggesting ongoing monitoring and adaptive tools for inclusivity.
Individuals with neurodevelopmental disorders and intellectual disabilities face research exclusion due to complex consent processes. This article highlights how fluctuating capacity challenges binary assessment models. We propose ongoing capacity monitoring, independent consent monitors, and adaptive tools to ensure ethical inclusivity and respect for participant autonomy in clinical research.
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Santoro et al. (2026) studied this question.
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