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Co-design study shows the development of an accessible digital feedback questionnaire in people with aphasia, indicating the value of participatory research in rehabilitation.
Background: Speech and language therapy can provide beneficial in post-stroke aphasia rehabilitation, and intensity is a key of a successful programme. Information and communication technologies (ICT) may offer an option for the provision of rehabilitation but the views of those undertaking this mode rehabilitation must be considered to ensure motivation and adherence with self-administered rehabilitation. There is no consensus for recording feedback from people with aphasia on user of ICT-delivered aphasia rehabilitation. This paper reports the collaborative development of a feedback questionnaire with with aphasia for people with aphasia.: There are three research aims (i) to develop a questionnaire to feedback on ICT-delivered aphasia rehabilitation by collaboratively working with people with aphasia in the design process,(ii) to describe the development process and the co-design techniques employed, and (iii) to explore the experiences of co-designers in development process. & Procedures: Using public patient involvement (PPI) in research, a co-design process was employed throughout 6 workshops. Six people with aphasia (43 to 76 years of age) a range of aphasia severities (Western Aphasia Battery Quotient range 24.4–83) engaged in the co-design process. The final product, an online user feedback questionnaire, was. Individual exit interviews were carried out with the codesigners after the workshops, and a thematic analysis of the data was completed. & Results: The final questionnaire provides an outcome that investigates: cognitive workload, satisfaction, programme functionality and ease of use, and the level of assistance when engaging in ICT-delivered aphasia rehabilitation. It is as an online survey in an aphasia-accessible format. the co-design experience, four themes were identified the exit interviews: Group Dynamics, Balance of Complexity of, Reflection on Abilities and Positive Experience. The co-design provided opportunities for social interaction with other people aphasia and allowed co-designers to reflect on their own abilities. workshops were considered accessible and facilitated their engagement in the co-design process. The process was inclusive and co-designers reported feeling comfortable about contributing in workshops and this was also noted in their feedback in the individual exit interviews.: People with aphasia can, and should, be included in stages of the aphasia research process and especially in the and design of evaluation measures for use by people aphasia.
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Kearns et al. (2019) studied this question.
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