Why the study?
Health care use patterns of individuals with genetic heart disease and their at-risk relatives, including hospital admissions and emergency department presentations, are poorly understood.
Population
1720 AGHD Registry participants and at-risk relatives residing in New South Wales, Australia
Comparison
Linkage to routinely collected whole-population health datasets across disease, sex, socioeconomic status, and other factors
Design
Registry-based data linkage study protocol
Authors
Loading...
This protocol outlines a data linkage study to examine health care use patterns and disease burden among individuals with genetic heart diseases and their relatives in New South Wales, Australia.
This protocol outlines a data linkage study to examine health care use patterns and disease burden among individuals with genetic heart diseases and their relatives in New South Wales, Australia.
Butters et al. (2023) studied this question.
Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context: