As personalized digital healthcare is attracting attention, recognition of data sovereignty has been essential in healthcare data exchange. Dynamic consent is a new approach that patients enable to tailor and manage their consent. It expands patients' autonomy by giving the right to intervene in the healthcare data exchange process. This study proposes a Coded Dynamic Consent framework based on blockchain. We developed five design criteria to support dynamic consent and represent consent preferences as a coded format. The framework ensures data sovereignty and autonomy of a data provider so that patient-centered healthcare data exchange environment could be achieved.
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Lee et al. (2020) studied this question.
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