The goal of this research was to understand life with end-stage renal disease (ESRD). Medical practice, based in biomedicine, focuses on physical aspects of illness. A sociocultural case studies approach was used to develop a “situated ” understanding of life for 4 people with ESRD. This research revealed that life with ESRD is work. The collaborative engagement in this work is overlooked by biomedical stud-ies that focus on illness as a physical condition of individuals. Medical knowledge is argued to be epistemically deficient in it’s failure to consider the 3 critical sources of knowledge: practitioners, par-ticipants, and participants ’ significant others. This research identifies the need for a bridge between the home world and the hospital world, creating a broader community of practice.
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Faber et al. (2003) studied this question.
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