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Founding documentation package outlines the initial design of an international clinical registry for fragility fractures, suggesting future research applications.
OpenFFR v0 — Founding documentation package for the Open Fragility Fracture Registry, an open international, federated, non-profit clinical registry of fragility fractures, an initiative of FFN — Fragility Fracture Network Portugal, Associação. This package contains nine documents constituting the initial design of the registry: institutional one-pagers (PT/EN), the protocol for institutional adhesion, the internal regulation, the data dictionary, the founding minutes template, the indicator catalogue and its companion clinical manual, and the Cognitive & Functional Baseline Assessment Form (CFBAF). The CFBAF is the distinguishing element of OpenFFR: a structured instrument for harmonised capture of pre-fracture cognitive, functional and frailty status, integrating five validated scales (categorical cognitive status, IQCODE-SF, 4AT, NMS, CFS Rockwood) with explicit application and scoring rules. Working draft — not for clinical use in this state.
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Bruno Carvalho (2026) studied this question.
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