From Community Voices to Community Reach: Disseminating a Social Media Educational Toolkit About Endometrial Cancer in Black Communities

Endometrial cancer has a mortality rate that is twice as high in Black people compared to White people. To address this disparity, we created a culturally relevant educational toolkit to raise awareness of symptoms. We collaborated with consultants, two Black endometrial cancer survivors and two Black gender-expansive health advocates. We chose our consultants to ensure we generated inclusive information in order to incorporate the diversity among Black individuals with a uterus. The toolkit was developed through a mixed-methods study and was iteratively refined with community input. We launched the toolkit on social media in three waves, partnered with community organizations, and tracked interaction metrics to identify the most effective dissemination channels and the most engaging. The toolkit contained knowledge translation infographics and a decision aid in the form of an interactive quiz. In Wave 1, we launched the infographics and found that Instagram was the most successful platform. In Wave 2, we added the decision aid. Combining both knowledge translation and decision-making components, we launched Wave 3. Six community organizations tailored the toolkit’s content to their areas of interest. The most popular post focused on preparing for a gynecologic visit. For our gender-expansive partners, information about testosterone and the uterus was another popular post. For non-cancer-specific organizations, background on endometrial cancer and survival disparities was next in popularity. Among individuals who interacted with the decision aid (N=34), 47.1% had responses indicating non-minimal endometrial cancer risk. We created a culturally relevant, gender-inclusive educational toolkit as a living document to continuously empower communities most at risk of endometrial cancer.