Milestone 14 - Patient and Public Involvement and Engagement (PPIE) in Cancer Policy and Governance: Exploring Current Practices in Public Administration

This document presents the second Maturity Map developed under the ECHoS project, providing an overview of the institutionalisation of patient and public involvement and engagement (PPIE) in cancer policy and governance across EU Member States and Associated Countries. It examines how PPIE is integrated within public administration structures, highlighting different levels of maturity in governance approaches. While patient and public involvement is widely recognised across Europe, the analysis shows significant variation in how it is formalised, with many systems still relying on informal practices and organisational openness rather than structured frameworks. The document also identifies key gaps and provides recommendations to strengthen more consistent and sustainable engagement in oncology governance and policy development.