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July 4, 2026Ethics & Human Research

Policies Regarding the Inclusion of Individuals with Limited English Proficiency: A Cross‐Institutional Analysis

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Authors

NMNeha MukherjeeJMJoseph MadourTBTheodore Bania

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Overview

Cross-institutional analysis assesses informed consent policies for individuals with limited English proficiency, highlighting discrepancies.

Key Points

  • The study aims to explore the presence of policies regarding the inclusion of individuals with limited English proficiency (LEP) in clinical research.
  • Analyzed policies from the top 50 institutions receiving funding from the National Institutes of Health.
  • Investigated the presence of inclusion statements, minimal risk specifications, and translation requirements for study materials.
  • Assessed provisions for funding the translation of consent forms into non-English languages.
  • Found significant variation in policies across institutions regarding LEP inclusion.
  • Identified discrepancies in requirements for translation of study materials and consent forms.
  • Established a benchmark for assessing the evolving standards for including LEP individuals in research.

Cite This Study

Mukherjee et al. (2026) studied this question.

synapsesocial.com/papers/6a48a4c689561a0c2d78de8chttps://doi.org/10.1002/eahr.70015
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