Discusses ethical justifications for including individuals without decision-making capacity in research, suggesting a balance between protection and inclusion.
Key Points
The paper aims to explore the ethical and legal justifications for including individuals without decision-making capacity in research.
Analyzes the ethical principle regarding inclusion of individuals without decision-making capacity in research.
Discusses perspectives from disability rights regarding current ethical standards.
Proposes modifications to balance protection and inclusion.
Argues that the current ethical principle is overly protective and limits research opportunities for individuals with disabilities.
Suggests that modification of the principle could enhance research participation while ensuring protection.
Emphasizes the need for a more equitable participation framework for individuals lacking decision-making capacity.