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Perspective highlights challenges of young onset dementia, suggesting improvements in care and policy.
This perspective draws on the experience of the author as a care partner, navigating her husband’s diagnosis. It explores challenges families face including delayed recognition, and highlights how lived experience can inform research, clinical care, and policy. By sharing this story, the author illuminates the realities of living with dementia at a younger age and the opportunities for the scientific communities to design systems that support purposeful life after diagnosis.
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Kristin Carpenter (2026) studied this question.
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