What does this research mean for the field?

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While newer biological treatments for rare diseases are relatively well-tolerated, their high cost limits access, leaving many patients reliant on older therapies like immunosuppressants that carry significant long-term adverse effects, highlighting the need for medicine repurposing and data from lower-income countries. Novelty: ClaimNovelty.SYNTHESIS. Consensus alignment: ConsensusAlignment.NEUTRAL.

Adverse events experienced by people living with chronic rare diseases: A scoping review

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