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July 26, 2026American Journal of Perinatology ReportsOpen Access

Barriers to Parental Engagement in NICU Infants with Congenital Anomalies: An Exploratory Pilot Study in Fetal Center Mother-Infant Dyads

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Authors

JRJaclyn RuggieroACAditi ChunduruWLWen Li

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Overview

Exploratory pilot study identifies factors influencing parental involvement in NICU infants with congenital conditions, suggesting implications for future research.

Key Points

  • The study aims to explore factors impacting parental engagement in the NICU among mother-infant dyads at a Fetal Center.
  • Mixed retrospective and prospective data collection at a Level IV NICU and affiliated Fetal Center
  • Tracking parental visitation patterns through bedside documentation tools
  • Analysis of medical, socio-demographic, and maternal mental health factors
  • Mean time to first parental visitation was 7.6 hours.
  • Mean time to first skin-to-skin contact was 8.3 days.
  • Earlier visitation was associated with mothers providing expressed breast milk at postnatal day 14 (p=0.016).

Cite This Study

Ruggiero et al. (2026) studied this question.

synapsesocial.com/papers/6a65a890d3aea3239cd78dafhttps://doi.org/10.1055/a-2920-8381
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Also Consider

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  1. 1Promoting Equity in Parent Presence and Participation in Neonatal Intensive Care: Protocol for a Prospective Cohort Study2025
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  3. 3Promoting Equity in Parent Presence and Participation in Neonatal Intensive Care: Protocol for a Prospective Cohort Study (Preprint)2025
  4. 4Assessing the Impact of Different Levels of Parental Involvement in the NICU on Neonatal Outcomes and Parental Mental Health2024 · 1 citations
  5. 5Optimising parental self-efficacy in the neonatal intensive care unit (NICU) and its implications on child care and parenting quality: a study protocol2026 · 1 citations