Why the study?
As survival into adulthood has become the norm for individuals with congenital heart disease, it has become clear that adults with CHD face unique challenges extending beyond biological effects.
Highlights the need to address the unique biopsychosocial challenges faced by the growing population of adults surviving with congenital heart disease.
Highlights need for specialized adult CHD programs; leaves open optimal lifelong care models in this growing population.
Survival into adulthood has become the new norm for individuals born with congenital heart disease (CHD). Nearly 90% of children with moderate or complex CHD now survive into adult life, creating a rapidly growing patient population that requires lifelong follow-up care.1 As life expectancy has improved, it has become clear that survival alone is not enough: adults with CHD face unique challenges that go far beyond the biological effects of their condition. Residual hemodynamic lesions, arrhythmias, multiple surgical interventions, and acquired comorbidities are only part of their health story.
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Seda Tierney (2025) studied this question.
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