The purpose of this study was to understand the lived experiences of family caregivers of persons with dementia in accessing resources as the disease progresses, using four focus groups. Findings indicate differences in caregiver needs by stage of dementia of the care recipient. Service professionals noted family-level dynamics as possibly hindering care and voiced concern with limited mental health services. The need to educate caregivers on the scope of available services and applicable information was clear.
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Rosanne DiZazzo-Miller (2013) studied this question.
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