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August 6, 2026Journal of Community GeneticsOpen Access

The social construction of the “good doctor”: Expectations of physicians among adults with NF1

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Authors

KKKatarzyna KowalJDJan Domaradzki

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Overview

Qualitative study explores adults' perceptions of a 'good doctor' in NF1, highlighting the role of communication and empathy.

Key Points

  • This study aims to explore how adults with NF1 define a 'good doctor' based on their healthcare experiences.
  • Qualitative study using semi-structured, in-depth interviews with 93 adults diagnosed with NF1
  • Adopted an interpretive qualitative approach to analyze data
  • Utilized Reflexive Thematic Analysis to explore patient expectations
  • Patients perceive a 'good doctor' as someone who communicates effectively, shows empathy, and acknowledges their experiences
  • Negative healthcare interactions, such as dismissal of symptoms, lead to disengagement, while positive experiences help build trust
  • Integrating clinical expertise with patient-centred care can enhance trust and quality of care for patients with NF1

Cite This Study

Kowal et al. (2026) studied this question.

synapsesocial.com/papers/6a7437c8764cddc9499d56bbhttps://doi.org/10.1007/s12687-026-00930-7
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