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One of the challenges facing the U.S. healthcare system is the ability to comprehensively serve those with relatively rare and complex disorders, particularly for those conditions that most impact communities that are historically disadvantaged and underserved. Such a condition is sickle cell disease (SCD), an inherited blood disorder that results in a lifetime of anemia, severe episodes of pain, and childhood onset of acute and chronic organ damage that progresses in adulthood, leading to premature mortality.
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Kathryn L. Hassell (2016) studied this question.
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