In Brief This article describes the initiation of the Children's Hospice and Palliative Care Coalition, an organization that emerged from the concern of two women for the unique needs of children with life-threatening conditions. The Coalition, based in California, was inspired to improve care for children with life-threatening conditions and their families by the 2002 Institute of Medicine report When Children Die:… (which was printed in 2003: Field & Behrman, 2003). Its most recent work has been to advance legislative initiatives to develop, implement, and evaluate a pilot project waiver to provide a federally funded pediatric care benefit. The brutality of 9/11 caused many people to change their lives and dedicate themselves to helping others. Read about these two mothers who took it upon themselves to help dying children. Their story is one you won't soon forget.
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Dabbs et al. (2007) studied this question.