The ethical concerns in statements of 116 family caregivers to dementia patients were identified. Concerns included family obligations for caregiving; conflicts with responsibilities to family, career or personal well-being; financing health care; standards of care; and patient roles in planning care. These concerns are related to societal allocation of resources for health care, the principle of autonomy, and several other ethical issues.
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Pratt et al. (1987) studied this question.