Key result
The pilot study demonstrated the feasibility of the Brazilian Headache Registry protocol in tertiary centers, with primary headaches accounting for 85.3% of the diagnoses made.
Why the study?
Evaluating and treating primary and secondary headaches is a global public health challenge, prompting the Brazilian Headache Society to propose the Brazilian Headache Registry.
Observational (n=66)
Yes
The pilot study demonstrated the feasibility of the Brazilian Headache Registry protocol in tertiary centers, highlighting a high prevalence of primary headaches and psychiatric comorbidities.
Hypothesis-generating for national headache registry rollout; prospective validation needed before clinical adoption.
BACKGROUND: Evaluation and treatment of primary and secondary headaches is a global public health challenge. Recognizing the epidemiological impact of headaches, a group of researchers linked to the Brazilian Headache Society proposed the Brazilian Headache Registry and drew up its initial protocol. OBJECTIVE: Here we describe the methods and preliminary data obtained from the pilot study. METHODS: This was a multicenter longitudinal observational study conducted between September 2020 and August 2021. Prospective data were collected in three specialist centers for headache care in states in southern and southeastern Brazil. Patients aged 18 years or older who sought care for headache in tertiary centers and who agreed to participate in the study, were considered eligible. RESULTS: Sixty-six patients were included in the pilot study: 43 (65%) from Rio Grande do Sul state and 23 (35%) from Minas Gerais state. Overall, 90% were female, and the subjects' mean age was 38.2 ± 11.2 years. Primary headaches accounted for 85.3% of the diagnoses made. Among secondary headaches, medication overuse headache was the most frequent type (7.1%). CONCLUSIONS: The pilot study showed the feasibility of the research protocol developed for tertiary centers. The Brazilian Headache Registry will form a source of longitudinal data with the aim of contributing to better characterization of the various phenotypes of patients with primary and secondary headaches, and to detailing the use of health resources and identifying predictors of better clinical outcomes.
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Grassi et al. (2023) conducted an observational in Headache (n=66). Routine headache care at tertiary centers was evaluated on Feasibility of the research protocol and baseline clinical characteristics. The pilot study demonstrated the feasibility of the Brazilian Headache Registry protocol in tertiary centers, with primary headaches accounting for 85.3% of the diagnoses made.
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