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We have read with a great interest the paper of Singh et al. summarizing the NICE recommendations for supporting young people in their transition to adults’ services (1). The Necker-Enfants malades (NEM) University hospital in Paris, France, the first paediatric hospital in the world, has been involved for years in the diagnosis and treatment of children and young adults with rare diseases. Transition is a challenging issue in this structure where we observe that inadequate support can lead to disrupted care, increased morbidity and mortality rates. Moreover disengagement is more likely to happen amongst young adults who experience psychological and social difficulties
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Singh et al. (2016) studied this question.
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