Why the study?
Increased awareness and advances in genetic testing have raised demand for specialist inherited cardiac condition services, driving the evolution of specialist and autonomous nursing roles.
Specialist nursing roles are essential in providing holistic, multidisciplinary care for children and young people with inherited cardiac conditions.
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Hypothesis-generating for specialist nurses in pediatric ICC MDTs; leaves open outcome studies before practice change.
Inherited cardiac conditions (ICCs) encompass a range of rare genetic heart diseases and require the expert care of a skilled multidisciplinary team. Increased awareness of these conditions and advances in genetic testing have led to a rise in demand for specialist ICC services. The Centre for Inherited Cardiovascular Diseases at Great Ormond Street Hospital in London, England, is a tertiary centre for the diagnosis and management of ICCs in children and young people. Specialist nursing roles have developed at the centre in recent years in parallel with the growth of ICC nursing. There are also increasing opportunities for advanced and autonomous nursing practice to support the provision of high-quality care for children and young people affected by ICCs and their families.
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Tollit et al. (2024) studied this question.
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