Breathlessness in end-stage heart failure requires a holistic, multi-disciplinary approach including pharmacological and non-pharmacological therapies, ideally supported by a specialist cardiac nurse.
May support holistic breathlessness care in end-stage HF; leaves open specialist nurse benefits pending RCTs.
Breathlessness is a common and distressing symptom in end-stage heart failure, impacting adversely on quality of life for both the patient and the carer. Breathlessness is recognized as being a multi-factorial subjective experience. Research into effective therapies is surprisingly sparse, although this is a common feature in the end stages of a number of diseases. A complex holistic assessment must first exclude a treatable underlying cause and ensure that medications have been optimized. A variety of both pharmacological and non-pharmacological therapies are available for breathlessness. Treatment is likely to require an approach incorporating both and addressing identified physical, social, psychological and spiritual needs to provide optimum relief. A skilled and experienced specialist cardiac nurse is ideally placed both to assess the breathlessness and to support the patient in finding effective therapies at the end of life.
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MacCallum et al. (2009) studied this question.
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