Restricting Access, Stigmatizing Disability?

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Armstrong, K. A., and J. P. Metlay. 2020. Annals clinical decision making: Communicating risk and engaging patients in shared decision making. Annals of Internal Medicine 172 (10):688–92. Bayefsky, M., and B. E. Berkman. 2022. Implementing expanded prenatal genetic testing: should parents have access to any and all fetal genetic information? The American Journal of Bioethics 22 (2):4–22. doi:10.1080/ 15265161.2020.1867933. Boardman, F. K., and C. C. Clark. 2021. What is a ‘serious’ genetic condition? The perceptions of people living with genetic conditions. European Journal of Human Genetics 1–10. doi:10.1038/s41431-021-00962-2. Coron, F., T. Rousseau, G. Jondeau, E. Gautier, C. Binquet, L. Gouya, V. Cusin, S. Odent, Y. Dulac, H. Plauchu, et al. 2012. What do French patients and geneticists think about prenatal and preimplantation diagnoses in Marfan syndrome? Prenatal Diagnosis 32 (13):1318–23. De Bie, S., A. De Paepe, I. Delvaux, S. Davies, and R. C. Hennekam. 2004. Marfan syndrome in Europe. Public Health Genomics 7 (4):216–25. Dietz, H. 2001. Marfan Syndrome. In GeneReviewsVR , ed. M. P. Adam, H. H. Ardinger, R. A. Pagon. Seattle, WA: University of Washington. National Academy of Medicine, National Academy of Sciences, and the Royal Society. 2020. Heritable Human Genome Editing. Washington, DC: The National Academies Press. doi: 10.17226/25665. Kleiderman, E., V. Ravitsky, and B. M. Knoppers. 2019. The ‘serious’ factor in germline modification. Journal of Medical Ethics 45 (8):508–13. Kleiderman, E., V. Ravitsky, and B. M. Knoppers. 2020. ‘Serious’ factor—a relevant starting point for further debate: a response. Journal of Medical Ethics 46 (2): 153–5. Ravitsky, V., M. T. Nguyen, S. Birko, E. Kleiderman, A. M. Laberge, and B. M. Knoppers. 2019. Pre-implantation genetic diagnosis: the road forward in Canada. Journal of Obstetrics and Gynaecology Canada 41 (1):68–71. Wertz, D. C., and B. M. Knoppers. 2002. Serious genetic disorders: Can or should they be defined? American Journal of Medical Genetics 108 (1):29–35. doi:10.1002/ ajmg.10212.