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The decision to forgo life-sustaining treatment is made for 20–55% of terminally ill children in North American and European pediatric intensive care units (PICUs) [1–3]. The management of children at the end of life (EOL) can be divided into three steps. The first concerns the decisionmaking process. The second concerns the actions taken once a decision has been made to forgo life-sustaining treatments. The third regards the evaluation of the decision and its implementation. Several guidelines have been published on these different steps [4,5]. However, each step raises its share of controversies and presents tremendous opportunities to improve EOL care in the PICU.
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Devictor et al. (2008) studied this question.
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