aking a reality of user involvement requires a great deal more than the simple inclusion of token representatives on committees or a signature on a care plan. If the involvement of service users is to be meaningful, it requires a major cultural change for service providers at all levels: ■ strategic: input to the development, planning and organisation of services ■ operational: providing feedback about the experience of services – community teams, wards, day facilities, residential units – to inform decisions about the way they are run ■ individual: making decisions about individual treatment and support and the ways in which this will be provided.
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Perkins et al. (2004) studied this question.
Synapse has enriched 2 closely related papers on similar clinical questions. Consider them for comparative context: