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Unrest is stirring in Europe over a proposed amendment to the EU's draft General Data Protection Regulation that would prohibit researchers from using individual medical records for research unless explicit consent for that purpose has been given by patients. The policy, if implemented, would dramatically reduce the ability to conduct investigations involving data from disease registries and stymie cohort studies, which obtained more general consent from their participants years ago.
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Elie Dolgin (2014) studied this question.
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