An Exploration of the Experience of Mothers Whose Children Sustain Traumatic Brain Injury (TBI) and Their Families

This study aims to describe and explore the lived experience of mothers whose children, aged 0-16 years, have sustained a traumatic brain injury (TBI). Mothers were interviewed between 2 and 10 years following the TBI. The study employed a qualitative method, interpretative phenomenological analysis (IPA), following semi-structured interviews with 10 mothers. Validity measures included independent audit of the analysis. The analysis generated themes of ;changes to and loss of the past child', ;effects on mother's health', ;mother's process of coping and support', ;changed roles', ;effects on the whole family' and ;contact with services'. Discussion of the links between participants' accounts and grief and attachment theories is provided, with a view to informing assessment and rehabilitative practice with children and families. The clinical implications of mothers' descriptions for psychological intervention and service delivery are explored.