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Parents of a child with hypoplastic left heart syndrome emphasize that despite successful surgical palliation, there is ongoing anxiety and a need for research on long-term neurodevelopmental outcomes.
A commentary providing parental and medical perspectives on the journey of caring for a child with hypoplastic left heart syndrome, emphasizing the need for future research on neurodevelopmental and psychosocial outcomes.
This article, co-authored by parents of a child with hypoplastic left heart syndrome (HLHS) and his pediatric cardiology care team, discusses the parents' experience of having a child with HLHS from diagnosis through living day-to-day with the heart condition as well as future directions.
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Nicholas et al. (2021) conducted an editorial in Hypoplastic left heart syndrome (HLHS) (n=1). Staged palliation (hybrid approach) was evaluated. Parents of a child with hypoplastic left heart syndrome emphasize that despite successful surgical palliation, there is ongoing anxiety and a need for research on long-term neurodevelopmental outcomes.
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