Parents' Needs for Speech-Language Pathology Services in Private Sector NICUs and Postdischarge in South Africa

Speech-language pathologists play an important role in neonatal teams by supporting small vulnerable neonate's developmental needs through collaborative care, parent education, early intervention, and discharge planning. Parents' needs of speech-language pathology services in private sector units may inform systemic change in neonatal care. This study explored parents' experiences and needs regarding such support during and after Neonatal Intensive Care Unit admission. An online survey was completed by 42 parents whose infants had been admitted to private sector Neonatal Intensive Care Units, most born moderate-severe preterm (28–33 weeks). Although most parents felt welcome and involved in care, many reported emotional distress, limited bonding opportunities, and inadequate support for feeding and communication interaction. A considerable proportion described stressful feeding experiences and minimal referral to speech-language pathologists. Information on parent-infant communication and developmental milestones was also insufficient. Findings highlight the need for stronger integration of speech-language pathology services within private Neonatal Intensive Care Units and improved continuity of care postdischarge to support parent-infant interaction, feeding, and developmental outcomes. Advocacy for systemic change and greater speech-language pathology involvement is important to optimize care for small vulnerable newborns and their families in South Africa's private health care sector.